This weekend, Team Pale Skin Is In will be running in the PF Chang's half marathon here in Phoenix (Jan 15, 2012). While last year we ran to raise money for the Melanoma Foundation, this year we are running to raise money for The Shade Foundation (www.shadefoundation.org). Their mission is to "To eradicate melanoma through the education of children and the community in the prevention and detection of skin cancer and the promotion of sun safety."
Help support Team Pale Skin Is In and The Shade Foundation by making a donation! You tax deductible donation will go a long way in helping The Shade Foundation continue with great programs to educate school children and communities about Skin Cancer prevention.
http://www.shadefoundation.org/sunset-run-for-shade.php
If you would like to be part of Team Pale Skin Is In, either to run or just be part of the team, let me know - its not too late! We would love to have you join us...
Wednesday, January 11, 2012
Tuesday, November 29, 2011
It has been a while...an update!
As Thanksgiving has now passed us and we are all reflecting on what we are thankful for, I realize that that it is my turn...
Since Tina's passing, I have not been able to officially thank those who have supported us over the last few months. Know that words cannot express the thanks to those whom have done so much for our family and in support of 'Pale Skin Is In'. It has truly been amazing. It has obviously been a difficult couple of months without Tina, but Teya and I are finally starting to get into the swing of it being just the two of us. Luckily I have had the full support of my work, JDA Software, so that has helped the transition immensely. I am also very proud of how my little girl has handled all of this. She definitely learned from her mother! I know this may be a bit late, but thank you...
Many people have been asking, so what is going to happen to Pale Skin Is In? It was always Tina's hope to have Pale Skin Is In educate and raise awareness of melanoma, especially for children, so that is just what we are going to continue to try and do. First and foremost, in Tina's memory we are building a sun shade at the school Tina worked as a pre-school teacher, and loved, Paradise For Tots. I thank everyone who donated to the cause! The project is now in production mode, so I will hopefully have more information in a few short weeks! The Phoenix and Michigan chapters of Team Pale Skin Is In will continue to try to keep Tina's work alive - educating and raising awareness of melanoma!
Also, following up on the success of last year’s PF Chang's half marathon and raising money for the Melanoma Foundation, Team Pale Skin Is In will again be running in the PF Chang's half marathon here in Phoenix (Jan 15, 2012). I was able to find the perfect cause to raise money for - a 501(c)3 non-profit The Shade Foundation (www.shadefoundation.org). It was started by a former Phoenician Shonda Shilling, wife of former MLB pitcher Curt Shilling. Shonda started the foundation back in 2001 after her own battle with melanoma. Their mission is to "To eradicate melanoma through the education of children and the community in the prevention and detection of skin cancer and the promotion of sun safety." I can't think of a better organization to raise money for! This year, we will again be running in the Phoenix PF Chang's half marathon, but a few people will also be running in the Las Vegas PF Chang's half marathon Dec 4th! Last year we raised over $4500 for the Melanoma Foundation, this year we hope to raise that much or more for the Shade Foundation...
If you would like to be part of Team Pale Skin Is In, either to run or just be part of the team, let me know - you might get a cool shirt out of it! If you would like to donate and help Team Pale Skin Is In "Run for the Shade", it would be greatly appreciated:
http://www.shadefoundation.org/sunset-run-for-shade.php
Finally, I hope to be a bit better on updating this site with the progress of Team Pale Skin Is In as we continue Tina's mission - education and awareness! Thanks again for all your support...
Todd
Since Tina's passing, I have not been able to officially thank those who have supported us over the last few months. Know that words cannot express the thanks to those whom have done so much for our family and in support of 'Pale Skin Is In'. It has truly been amazing. It has obviously been a difficult couple of months without Tina, but Teya and I are finally starting to get into the swing of it being just the two of us. Luckily I have had the full support of my work, JDA Software, so that has helped the transition immensely. I am also very proud of how my little girl has handled all of this. She definitely learned from her mother! I know this may be a bit late, but thank you...
Many people have been asking, so what is going to happen to Pale Skin Is In? It was always Tina's hope to have Pale Skin Is In educate and raise awareness of melanoma, especially for children, so that is just what we are going to continue to try and do. First and foremost, in Tina's memory we are building a sun shade at the school Tina worked as a pre-school teacher, and loved, Paradise For Tots. I thank everyone who donated to the cause! The project is now in production mode, so I will hopefully have more information in a few short weeks! The Phoenix and Michigan chapters of Team Pale Skin Is In will continue to try to keep Tina's work alive - educating and raising awareness of melanoma!
Also, following up on the success of last year’s PF Chang's half marathon and raising money for the Melanoma Foundation, Team Pale Skin Is In will again be running in the PF Chang's half marathon here in Phoenix (Jan 15, 2012). I was able to find the perfect cause to raise money for - a 501(c)3 non-profit The Shade Foundation (www.shadefoundation.org). It was started by a former Phoenician Shonda Shilling, wife of former MLB pitcher Curt Shilling. Shonda started the foundation back in 2001 after her own battle with melanoma. Their mission is to "To eradicate melanoma through the education of children and the community in the prevention and detection of skin cancer and the promotion of sun safety." I can't think of a better organization to raise money for! This year, we will again be running in the Phoenix PF Chang's half marathon, but a few people will also be running in the Las Vegas PF Chang's half marathon Dec 4th! Last year we raised over $4500 for the Melanoma Foundation, this year we hope to raise that much or more for the Shade Foundation...
If you would like to be part of Team Pale Skin Is In, either to run or just be part of the team, let me know - you might get a cool shirt out of it! If you would like to donate and help Team Pale Skin Is In "Run for the Shade", it would be greatly appreciated:
http://www.shadefoundation.org/sunset-run-for-shade.php
Finally, I hope to be a bit better on updating this site with the progress of Team Pale Skin Is In as we continue Tina's mission - education and awareness! Thanks again for all your support...
Todd
Sunday, July 31, 2011
Memorial Service for Tina...
Wanted to let everyone know we will be having a memorial service for Tina on Tuesday, August 16th at 6:30pm at the Scottsdale Worship Center in Scottsdale, AZ...
Scottsdale Worship Center
6508 East Cactus Road
Scottsdale, AZ 85254-4553
(480) 483-2401
We give more details as we get them...
Scottsdale Worship Center
6508 East Cactus Road
Scottsdale, AZ 85254-4553
(480) 483-2401
We give more details as we get them...
Friday, July 22, 2011
The journey has ended...
It is with a heavy heart and great sadness that I let you know Tina's journey has ended. She went peacefully this afternoon, and was surrounded by family. Tina's story of her battle with melanoma touched many people, and was an inspiration to all - she will be missed dearly...
We will be having a memorial service on Monday here in Michigan, and will share more information once we get it...
We will be having a memorial service on Monday here in Michigan, and will share more information once we get it...
Thursday, July 21, 2011
Heading home...
Well, we checked Tina out of the hospital today and brough her back to her parents house for the last part of her journey. Her condition has worsened unexpectedly the last week, and after running a number of tests at the hospital, they determined there just wasn't anything they could do to help her. She was happy to be going home though, so at least she can be comfortable and surrounded by family and friends.
It is very hard to see someone so strong, such a fighter, and such an inspiration to so many people, so weak. We all still believe in miracles though, so any prayers or pleasant thoughts would be much apprecaited...
It is very hard to see someone so strong, such a fighter, and such an inspiration to so many people, so weak. We all still believe in miracles though, so any prayers or pleasant thoughts would be much apprecaited...
Sunday, July 17, 2011
Got some good news, got some bad news...
Well, have some good news, and have some bad news for you. First, the bad news...
Today we had to check Tina into the hospital. The last 4 or 5 days have been really bad for her, and she has been getting weaker and weaker every day. She had lost a lot of weight, her energy level was down, and she had very little appetite. We had a talk with her, and we gave her the option to head to a hospital, or wait a day or two to see if she got better. With the way she was feeling, she opted to head to the hospital...and we all agreed it was the right thing to do.
The good news, if you can call it good news, is we now know why she was feeling so bad - pneumonia. I guess the infection in her left lung is really bad. She was moved to ICU, and they have already begun treatment for it. We are hoping for a speedy recovery, but due to the weak condition she was in before we got to the hospital, it might take a bit longer than normal for her. Yes, it is a stretch to call it good news, but it could have been much worse - at least it doesn't have anything to do with the cancer. We are happy we got her into the hospital when we did...
While we are here, we are also going to see if we can get a read of how Tina is doing aside from the pneumonia. Since she has been in hospice so long, we haven't really had any tests done on either her heart or her tumor(s). Hopefully being in the hospital might give us some information that might help us after she gets out as we look at the next steps to try and get her treatment - our goal AFTER we get her better from the pneumonia...
Anyway, will keep you updated in the next couple of days...
Today we had to check Tina into the hospital. The last 4 or 5 days have been really bad for her, and she has been getting weaker and weaker every day. She had lost a lot of weight, her energy level was down, and she had very little appetite. We had a talk with her, and we gave her the option to head to a hospital, or wait a day or two to see if she got better. With the way she was feeling, she opted to head to the hospital...and we all agreed it was the right thing to do.
The good news, if you can call it good news, is we now know why she was feeling so bad - pneumonia. I guess the infection in her left lung is really bad. She was moved to ICU, and they have already begun treatment for it. We are hoping for a speedy recovery, but due to the weak condition she was in before we got to the hospital, it might take a bit longer than normal for her. Yes, it is a stretch to call it good news, but it could have been much worse - at least it doesn't have anything to do with the cancer. We are happy we got her into the hospital when we did...
While we are here, we are also going to see if we can get a read of how Tina is doing aside from the pneumonia. Since she has been in hospice so long, we haven't really had any tests done on either her heart or her tumor(s). Hopefully being in the hospital might give us some information that might help us after she gets out as we look at the next steps to try and get her treatment - our goal AFTER we get her better from the pneumonia...
Anyway, will keep you updated in the next couple of days...
Friday, July 15, 2011
Michigan Update from Mom
Tina's first couple of weeks in MI went fairly well. Tons of changes for the Sullivan family for sure. Todd and Teya seemed to have settled in quite well. Tina has a first floor room in our home. She can see the water from her room and the living room. Tina enjoys spending some time on the deck which over looks a lake. Teya swims a lot and loves the speed boat. Todd is learning to drive the speed boat with dad skiing and mastering his own boarding skills.
Tina had to have an abnormal tap last Friday. The Hospital was able to remove 7-lbs of fluids, which brought much needed relief. Since the tap Tina has had some very good days and some bad ones. But with all the prayers we are thankful that the good days are out weighing the bad.
Today marked another start of a new challenge Tina is taking on. She began some small exercises to try and increase her strength in her legs and arms and over all body. I am very proud of her and believe she did a very good job. She has been doing some strengthen but is now working even harder. A good friend of mine brought over a walker with wheels and a seat on it. The walker truly made major changes in Tina's ability to walk more. Funny how simply things can truly change one's life.
She is surrounding with lots of family and friends. We never know who's stopping by for a visit: brother, aunts, uncles, cousins, niece's, nephews and friends. Even a sheriff stop by for a visit ha-ha her uncle. Tina's aunt comes now every Wed and spends the day with her and gives mom a much needed day off. Big hugs go out to her and those of our friends and family who have step up to take time out of there precious days to become part of Team Pale Skin is in.
One last bit of news while Todd continues to work out of the RV we all travel to MI in. He and Teya will have a new home by the first of the month. My husband and I bought the house next door to us and they will have a place to call home in MI. Teya says she can't wait to move in.
Well that's all for now, thank for all your love, prayers and support. Tina still feels it all and hopes one day soon she will be able to speak with you directly.
Tina had to have an abnormal tap last Friday. The Hospital was able to remove 7-lbs of fluids, which brought much needed relief. Since the tap Tina has had some very good days and some bad ones. But with all the prayers we are thankful that the good days are out weighing the bad.
Today marked another start of a new challenge Tina is taking on. She began some small exercises to try and increase her strength in her legs and arms and over all body. I am very proud of her and believe she did a very good job. She has been doing some strengthen but is now working even harder. A good friend of mine brought over a walker with wheels and a seat on it. The walker truly made major changes in Tina's ability to walk more. Funny how simply things can truly change one's life.
She is surrounding with lots of family and friends. We never know who's stopping by for a visit: brother, aunts, uncles, cousins, niece's, nephews and friends. Even a sheriff stop by for a visit ha-ha her uncle. Tina's aunt comes now every Wed and spends the day with her and gives mom a much needed day off. Big hugs go out to her and those of our friends and family who have step up to take time out of there precious days to become part of Team Pale Skin is in.
One last bit of news while Todd continues to work out of the RV we all travel to MI in. He and Teya will have a new home by the first of the month. My husband and I bought the house next door to us and they will have a place to call home in MI. Teya says she can't wait to move in.
Well that's all for now, thank for all your love, prayers and support. Tina still feels it all and hopes one day soon she will be able to speak with you directly.
Thursday, June 30, 2011
Michigan Bound!
Well, believe it or not, we are currently on an RV bound for Michigan...with Tina on board!
It was a tough decision, but Tina really wanted to be up by family to try and gain her strength back and get better. Since she is unable to fly, we knew driving was the only option. No way she could ride in a car in her condition, so we decided to RV it. We are the proud new owners of a 1991 33 ft Holiday Rambler! It has a great big queen size bed in the back, which is perfect for Tina.
We are at the tail end of the trip as we just entered Michigan, and it is a welcome relief to get out of the AZ heat. It has been a pretty good trip, and Tina is doing great. Teya is actaully having a pretty good time too, and Rick, Rose and I are splitting all the driving duties. Teya is in charge of the having fun in the RV duties, and it seems she is doing just that. Only been pulled over by the cops once on the trip...
So how long are we going to be in Michigan? Really, it is kinda unknown...but as long as is necessary. The main goal is to get Tina healthy, so she will stay at her parents house so everyone can help nurse her back to health, and the RV will be my new home/office. We are hoping to be here 1-2 months before we can head back to AZ. If we think it is going to be any longer than that, we will look to rent a house up here and go from there. Thankfully, my work has been great about me working remotely, so I really, really appreciate that. Two of Tina's co-workers from PTF are staying at our house while we are gone so Marley, Bo, Kitty and the fish will be well looked after, and our good friends Cathy and Jon are gonna help take care of any other house stuff that may arise. That makes the trip that much easier...
While we will dearly miss our AZ family, know you are in our thoughts. We have received such fantasic love and support from everyone, it made the decision to leave very, very though. Know the invite is out for anyone to come and visit! Might be a nice break to get out of the AZ heat and come play on the water. Thanks again for all the love, prayers and support!
It was a tough decision, but Tina really wanted to be up by family to try and gain her strength back and get better. Since she is unable to fly, we knew driving was the only option. No way she could ride in a car in her condition, so we decided to RV it. We are the proud new owners of a 1991 33 ft Holiday Rambler! It has a great big queen size bed in the back, which is perfect for Tina.
We are at the tail end of the trip as we just entered Michigan, and it is a welcome relief to get out of the AZ heat. It has been a pretty good trip, and Tina is doing great. Teya is actaully having a pretty good time too, and Rick, Rose and I are splitting all the driving duties. Teya is in charge of the having fun in the RV duties, and it seems she is doing just that. Only been pulled over by the cops once on the trip...
So how long are we going to be in Michigan? Really, it is kinda unknown...but as long as is necessary. The main goal is to get Tina healthy, so she will stay at her parents house so everyone can help nurse her back to health, and the RV will be my new home/office. We are hoping to be here 1-2 months before we can head back to AZ. If we think it is going to be any longer than that, we will look to rent a house up here and go from there. Thankfully, my work has been great about me working remotely, so I really, really appreciate that. Two of Tina's co-workers from PTF are staying at our house while we are gone so Marley, Bo, Kitty and the fish will be well looked after, and our good friends Cathy and Jon are gonna help take care of any other house stuff that may arise. That makes the trip that much easier...
While we will dearly miss our AZ family, know you are in our thoughts. We have received such fantasic love and support from everyone, it made the decision to leave very, very though. Know the invite is out for anyone to come and visit! Might be a nice break to get out of the AZ heat and come play on the water. Thanks again for all the love, prayers and support!
Friday, June 17, 2011
Tina's first week home...
So it has been a week since Tina has been home, and she seems to be doing a lot better. She still seems to have good days and bad days, but luckily, lately they have been good days. Much of the swelling she had when she was in the hospital seems to be going away, her heart rate seems to be a bit lower, and today she was even able to get out of the bed by herself and take about 10 steps with her walker! Might not seem like much, but for someone who has pretty much been confined to a bed/chair for the last 6 weeks, it was quite an accomplishment! Nothing like being home...
The hospice doctor was here today, and he too seemed impressed by her progress. He thinks we are going on the right path to get her better, but thinks it will definitely be more time.
I must clear something up though. While we say she is getting better with the little day to day things we post about - that we see as 'victories' - please understand how sick she really is. Why do I say this? It seems some people are thinking that she is getting better. Bottom line is she has a damaged heart that isn't working correctly, melanoma tumor(s) that are growing, and a girl that isn't yet strong enough physically to do anything about them. We need to get her heart better, so we can start some type of cancer treatment for the tumors. We are still a long way before she can start fighting again...
Now, if you know Tina though, you know that is nothing! Our girl is so strong and driven, we have no doubt she is going to pull through with flying colors. The thoughts and prayers that each of you have sent her way have definitely been felt! We thank you...
Anyway, will try to get an update again in the next few days...
The hospice doctor was here today, and he too seemed impressed by her progress. He thinks we are going on the right path to get her better, but thinks it will definitely be more time.
I must clear something up though. While we say she is getting better with the little day to day things we post about - that we see as 'victories' - please understand how sick she really is. Why do I say this? It seems some people are thinking that she is getting better. Bottom line is she has a damaged heart that isn't working correctly, melanoma tumor(s) that are growing, and a girl that isn't yet strong enough physically to do anything about them. We need to get her heart better, so we can start some type of cancer treatment for the tumors. We are still a long way before she can start fighting again...
Now, if you know Tina though, you know that is nothing! Our girl is so strong and driven, we have no doubt she is going to pull through with flying colors. The thoughts and prayers that each of you have sent her way have definitely been felt! We thank you...
Anyway, will try to get an update again in the next few days...
Friday, June 10, 2011
Quick note...Tina is home!
Being in the hospital just wasn't the environment she needed to fight, so we made the decision to bring her home with hospice, and the doctor's all gave the OK. The hospice staff took care of getting all the hospital equipment, medications, supplies, etc...and will be dropping by every day or two to help us take care of her.
It is the first step to getting her well enough to really begin fighting this fight...and nothing like being at home. Teya was especially excited...but I think all of us were equally thrilled, as it was a long 3 weeks with her in the hospital. Now we just need to get her better...
Thanks again for all your thoughts and prayers. Know that Tina can feel them, and they are a great strength for her, so thank you and keep it up!
It is the first step to getting her well enough to really begin fighting this fight...and nothing like being at home. Teya was especially excited...but I think all of us were equally thrilled, as it was a long 3 weeks with her in the hospital. Now we just need to get her better...
Thanks again for all your thoughts and prayers. Know that Tina can feel them, and they are a great strength for her, so thank you and keep it up!
Wednesday, June 8, 2011
The latest update on Tina...
I know many of you have been asking, so a quick update of the latest information for you...
It started on Saturday night, when Tina's heart rate skyrocketed to almost 200, so they rushed her down to ICU and tried to get her heart rate back in check. They did an Echocardiogram on her heart to see what was going on, the result was they found out the ejection fraction (the pumping function of the heart) was only about 15-17%, where a 'normal' heart is 50-60%.
The critical issue is she will not be able to survive if they can't get that percentage up, and we have been told this isn't really something that can 'improve' - so we don't really know what the next step is. While they really don't know what caused the problems, they think it might have been caused by her latest Chemo, DTIC (Dacarbazine). Unfortunately, Chemo isn't smart enough to just target the cancer; it works on all organs in the body. Bottom line is, the heart has become the biggest issue - if that can't be figured out, it doesn't matter what is happening with the cancer...
The good news is on Sunday, she was able to move out of the ICU and back up to a regular hospital room so Teya is once again able to visit. As for the next steps, we are pushing to get checked out of the hospital, hopefully as soon as tomorrow, and try to set up hospice at home. Tina just doesn't think she can fight like she will need to cooped up in a hospital room, and we all agree. Nothing like being home! We talked to the 'Hospice of the Valley' today, and as long as we can get checked out of here, we have them on board to get us all set up at home so they can help us care of her, and get back on the path to fighting this disease. Note though, while Tina's surrounds might have changed, her condition hasn't, so still no visitors - hope everyone understands...
As for Tina, she is an amazing person...and I can’t express the strength and fight she has. There have been a number of times where Doctor's have seemed to be ready to put her on 'Comfort Care', and just let everything play out. Talking with her though, they always change their minds when they see the strength and drive she has. It is amazing. She is actually very much at peace with what is going on. No pity, no 'feel sorry for me' attitude. She says she can defiantly feel all the prayers that everyone is sending her way, and helps to give her the peace and strength that she has.
Finally, thank you to everyone for the fund raisers, yard sales, lemonade stands, etc. as people try to raise money for Team Pale Skin Is In. It is amazing generosity that all of you have displayed, and it is much, much appreciated to alienate a huge burden on our family. Also, thank you for all the prayers, kind words, calls, emails, texts, etc. While we might not be able to get back to each of you individually, know that we appreciate it. Know as much as you are thinking of us, we are thinking of you…we have an amazing network of family and friends...
It started on Saturday night, when Tina's heart rate skyrocketed to almost 200, so they rushed her down to ICU and tried to get her heart rate back in check. They did an Echocardiogram on her heart to see what was going on, the result was they found out the ejection fraction (the pumping function of the heart) was only about 15-17%, where a 'normal' heart is 50-60%.
The critical issue is she will not be able to survive if they can't get that percentage up, and we have been told this isn't really something that can 'improve' - so we don't really know what the next step is. While they really don't know what caused the problems, they think it might have been caused by her latest Chemo, DTIC (Dacarbazine). Unfortunately, Chemo isn't smart enough to just target the cancer; it works on all organs in the body. Bottom line is, the heart has become the biggest issue - if that can't be figured out, it doesn't matter what is happening with the cancer...
The good news is on Sunday, she was able to move out of the ICU and back up to a regular hospital room so Teya is once again able to visit. As for the next steps, we are pushing to get checked out of the hospital, hopefully as soon as tomorrow, and try to set up hospice at home. Tina just doesn't think she can fight like she will need to cooped up in a hospital room, and we all agree. Nothing like being home! We talked to the 'Hospice of the Valley' today, and as long as we can get checked out of here, we have them on board to get us all set up at home so they can help us care of her, and get back on the path to fighting this disease. Note though, while Tina's surrounds might have changed, her condition hasn't, so still no visitors - hope everyone understands...
As for Tina, she is an amazing person...and I can’t express the strength and fight she has. There have been a number of times where Doctor's have seemed to be ready to put her on 'Comfort Care', and just let everything play out. Talking with her though, they always change their minds when they see the strength and drive she has. It is amazing. She is actually very much at peace with what is going on. No pity, no 'feel sorry for me' attitude. She says she can defiantly feel all the prayers that everyone is sending her way, and helps to give her the peace and strength that she has.
Finally, thank you to everyone for the fund raisers, yard sales, lemonade stands, etc. as people try to raise money for Team Pale Skin Is In. It is amazing generosity that all of you have displayed, and it is much, much appreciated to alienate a huge burden on our family. Also, thank you for all the prayers, kind words, calls, emails, texts, etc. While we might not be able to get back to each of you individually, know that we appreciate it. Know as much as you are thinking of us, we are thinking of you…we have an amazing network of family and friends...
Sunday, June 5, 2011
Mom Here Prayers Needed
Please stop right now and pray for Tina's heart. Her heart has began to fail and is being move to ICU as I type. I believe in the power of prayer and all of Tina's prayer Warriors. Please, Please she needs you NOW. Her heart is only functioning at 15% RIGHT NOW.
Monday, May 30, 2011
Update from Mom
Tina had grown strong enough and received her 2nd Chemo treatment today. Everything went well and she rested tons after. She was able to get in a chair for many hours this evening. Everything the doc's and nurses are doing to help her gain strength is enlighting to watch. She was able to get a family suite at the hospital which is wonderful for Teya to visit her in. Teya came for her first visit two days ago after not seeing mommy for Seven full days. It was a wonderful visit for both. Teya is able to continue visiting Tina once or twice a day. Teya cheers when she sees mommy in a chair. We all love the baby steps she has been taking.
Her Aunt Shelly has been here since last Wed. She's also from Michigan and will be leaving on Wed morning. She has been a blessing for Tina, her family and myself.
Little reminder if you feel you want to sent flowers, please refrain and click the donate button in the top right corner instead. Cards are more than welcome just sent them to Tina's home and Todd makes sure she gets all of them.
Once again none of this would be possible without the grace of God and your prayers.
Her Aunt Shelly has been here since last Wed. She's also from Michigan and will be leaving on Wed morning. She has been a blessing for Tina, her family and myself.
Little reminder if you feel you want to sent flowers, please refrain and click the donate button in the top right corner instead. Cards are more than welcome just sent them to Tina's home and Todd makes sure she gets all of them.
Once again none of this would be possible without the grace of God and your prayers.
Saturday, May 28, 2011
Update from Tina's mom
Many things have taken place since we've last posted. But the first thing I would like to say is your PRAYERS are working keep them coming.
Since the stents were placed on Tuesday Tina has been very ill. She has been a strong woman through it all. God has truly given her strength through your prayers. ICU was able to stabilize Tina and she was moved late last night to the Cancer floor to continue her battle. Our little warrior had yet another procedure this afternoon. They needed to place a tube in her colon to release the gases and some fluid. Since the stents Tina's bowel has yet to become active. The procedure went as planned and they were able to release the gas and some fluids. She also had another abdominal tap to relieve yet more fluids. She rested fairly well for hours. She remains getting her nutrition from a nutrition bag now for almost two weeks. These nutrition's help keep her to stay strong and to continue her fight.
Tina started physical therapy yesterday to help her get out of bed after being bed ridden for almost a full seven days. So for the next few days they will continue working with her helping to get her into a chair and hopefully start taking a few more steps every day.
Tina was due to have her second Chemo treatment on Friday but due to her health was unable to receive it. We are very hopeful with the new procedure she will be able to get the second Chemo treatment in the next few days.
As we watch Tina on this journey she has inspired many people here, doctors, nurses and those loved ones around here with her courage. But for all of you who have followed Tina these past five years you will not find this as any surprise.
In closing Tina asked that I share that all though she appreciates texts to her and calls. Do to the severity of her condition, she is not able to answer anyone at this time.
Keep the prayers coming because you are God's people and he is listening to you.
Since the stents were placed on Tuesday Tina has been very ill. She has been a strong woman through it all. God has truly given her strength through your prayers. ICU was able to stabilize Tina and she was moved late last night to the Cancer floor to continue her battle. Our little warrior had yet another procedure this afternoon. They needed to place a tube in her colon to release the gases and some fluid. Since the stents Tina's bowel has yet to become active. The procedure went as planned and they were able to release the gas and some fluids. She also had another abdominal tap to relieve yet more fluids. She rested fairly well for hours. She remains getting her nutrition from a nutrition bag now for almost two weeks. These nutrition's help keep her to stay strong and to continue her fight.
Tina started physical therapy yesterday to help her get out of bed after being bed ridden for almost a full seven days. So for the next few days they will continue working with her helping to get her into a chair and hopefully start taking a few more steps every day.
Tina was due to have her second Chemo treatment on Friday but due to her health was unable to receive it. We are very hopeful with the new procedure she will be able to get the second Chemo treatment in the next few days.
As we watch Tina on this journey she has inspired many people here, doctors, nurses and those loved ones around here with her courage. But for all of you who have followed Tina these past five years you will not find this as any surprise.
In closing Tina asked that I share that all though she appreciates texts to her and calls. Do to the severity of her condition, she is not able to answer anyone at this time.
Keep the prayers coming because you are God's people and he is listening to you.
Tuesday, May 24, 2011
Procedure completed...
Quick update on Tina's procedure this AM...Todd here...
Seems all went pretty well. They were able to get 2 seperate stents into her colon, which covered the majority of the affected area. While there was still a tiny bit that was not covered by a stent, he was very happy with the results so that is good news! It was really important to get this procedure done so we can get Tina back on the road to recovery, so we are very thankful it went well! As always, thanks for the thoughts and prayers...
Seems all went pretty well. They were able to get 2 seperate stents into her colon, which covered the majority of the affected area. While there was still a tiny bit that was not covered by a stent, he was very happy with the results so that is good news! It was really important to get this procedure done so we can get Tina back on the road to recovery, so we are very thankful it went well! As always, thanks for the thoughts and prayers...
Prayers needed
Yesterday I am having a very important procedure done. It is scheduled for 9am. A stent is being put into my colon. Please pray for successful placement. Thank you!
Sunday, May 22, 2011
Welcome to the Home of Team Pale Skin Is In
Friends and Family have created a Foundation support me. Below is an excerpt from the home page.
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Welcome to the Home of Team Pale Skin Is In
Simply stated, we are family and friends of Tina Sullivan who are united in support of her battle against stage IV Melanoma.
Tina is fighting valiantly and it is our vow to stand beside her. We share her discomfort, we share her joys. Most importantly, we ask that you join us. We have created Team Pale Skin Is In to serve as a foundation for which funds will be raised to assist the Sullivan family with medical expenses, treatment programs and other expenses incurred related to her fight. All proceeds go directly to the Sullivan family.
You can click on title of this blog or Website Address: http://www.paleskinisin.org/Default.aspx
==========================================================
Welcome to the Home of Team Pale Skin Is In
Simply stated, we are family and friends of Tina Sullivan who are united in support of her battle against stage IV Melanoma.
Tina is fighting valiantly and it is our vow to stand beside her. We share her discomfort, we share her joys. Most importantly, we ask that you join us. We have created Team Pale Skin Is In to serve as a foundation for which funds will be raised to assist the Sullivan family with medical expenses, treatment programs and other expenses incurred related to her fight. All proceeds go directly to the Sullivan family.
You can click on title of this blog or Website Address: http://www.paleskinisin.org/Default.aspx
Saturday, May 21, 2011
An update...
Greetings all, Todd here...
Just wanted to give everyone a quick update, as it has been an eventful few days for Tina. She has now been in the hospital since Monday (and is actually now in ICU since this morning). Doctor's really have no idea what is all going on with her...
Ever since she got here on Monday, it has been a continual race to try to get her better, but once they finally seem to get one of her symptoms in line, it seems something else starts acting up. While she was originally admitted to the hospital for dehydration (she couldn't swallow), she then started to have both abdominal and back pain, which have finally been taken care of. She also has problems swallowing due to her tongue having sores all over (while common for chemo patients, they think it might be some type of infection). Finally, last night we got a scare, as around 5 AM her heart rate spiked and she had a 103 temperature, which has landed her in ICU. Her temperature and heart rate are down, but the doctors are still trying to find some answers. The poor girl just cant get a break...
Anyway, just a quick update...will keep everyone posted on how she is doing. As of now, no idea on when she will be getting out, but it isn't looking like anytime soon. Of course prayers and positive thoughts are always appreciated!
Just wanted to give everyone a quick update, as it has been an eventful few days for Tina. She has now been in the hospital since Monday (and is actually now in ICU since this morning). Doctor's really have no idea what is all going on with her...
Ever since she got here on Monday, it has been a continual race to try to get her better, but once they finally seem to get one of her symptoms in line, it seems something else starts acting up. While she was originally admitted to the hospital for dehydration (she couldn't swallow), she then started to have both abdominal and back pain, which have finally been taken care of. She also has problems swallowing due to her tongue having sores all over (while common for chemo patients, they think it might be some type of infection). Finally, last night we got a scare, as around 5 AM her heart rate spiked and she had a 103 temperature, which has landed her in ICU. Her temperature and heart rate are down, but the doctors are still trying to find some answers. The poor girl just cant get a break...
Anyway, just a quick update...will keep everyone posted on how she is doing. As of now, no idea on when she will be getting out, but it isn't looking like anytime soon. Of course prayers and positive thoughts are always appreciated!
Wednesday, May 18, 2011
MRI Results
Quick update, MRI results are awesome - no melonoma!! PICC line is in and I will be receiving my first nutrition iv this evening. It actually just arrived! I look forward to getting some much needed nutrition. I also have a pain pump that was installed last night. Been having a little trouble remembering to use it, but glad it is in. Latest update is that I woke up this morning about 4am with back pain. Not lower back pain, it was up underneath my rib cage and caused a lot of pain and shortness of breathe - still is. Had a X-Ray to determine what it is. Results are not in yet. Will update as soon as I know.
Tuesday, May 17, 2011
In hospital
Sorry, this update is from my phone, so it is short. Since my last post, I was not feeling well. I wasn't eating, sleeping, could barely get out of bed. the progression of the cancer in my abdominal was fast. monday i went to er as i woke up and could not swallow. once there i had an mri of throat which did not show anything. docs then learned i was extremely dehydrated and admitted me to hospital. i have been receiving fluids and feel a little better. still cannot eat, so that is a major concern. trying to get a picc line put in and get nutrients that way which is iv. Tumors are causing a lot of pain that we are trying to manage. also just got back from mri of brain to check for melanoma. i have not been having symptoms. just checking.
Again, sorry so short. Just wanted everyone to know what is going on
Again, sorry so short. Just wanted everyone to know what is going on
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